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Join Us June 19th! Help Shine the Light on Sickle Cell Disease

On June 19th, people around the globe will come together to recognize the United Nation’s World Sickle Cell Awareness Day through a wide variety of online activities. The celebration is called Shine the Light on Sickle Cell Disease.

Hemanext is proud to be a partner of the Sickle Cell Disease Association of America (SCDAA).

SCDAA advocates for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure. Please click here to watch four short, inspirational videos by people living with sickle cell disease.

Through our partnership with SCDAA, we are promoting several opportunities for you and your family to celebrate Shine the Light on Sickle Cell Disease on June 19th. We invite you to add your voice to what will be an extraordinary, meaningful and memorable week of activities. Though our collective actions, let’s increase the awareness of sickle cell disease. Let’s create more allies willing to advocate for better lives for patients and their families and, one day, a universal cure. Join us to make a difference breaking the sickle cycle.

As the SCDAA says, together we can make a difference breaking the sickle cycle.

Here is How You Can Help:

Throughout June 19th, wear something red. Wherever you are in the world, shine a light at 8:00 pm local time. On your porch. In a window. With a flashlight. A mobile phone. Shine a light to show your support and increase awareness and advocacy for people with sickle cell disease. And encourage others to do the same.

Add a Shine the Light on Sickle Cell Disease frame to your Facebook Profile Picture Frame. Keep it on all week or just on June 19th. Encourage your contacts to add the frame. Click here for directions on how to make frame.

From 9:00 am to 9:00 pm EDT, SCDAA will create a virtual Twitter party with special activities, educational tweets, patient videos and more. Visit the  SCDAA website for details.

People from communities in the U.S. and African, Caribbean and European countries will create a Worldwide Zoom Event, hosted by the Sickle Cell Patient Thalassemia Network. Watch educational presentations, patient stories, music and entertainment. Register at: https://bit.ly/3dx5iOa

The president of Howard University and medical experts will discuss the “Role of Caregivers in Sickle Cell Disease and Impact of Covid 19″ from 4:00-5:00 pm EDT. Register at: www.eventbrite.com/e/103972522614

Using Facebook, Zoom or other social media platform, you can host a virtual gathering to watch the powerful documentary Spilled Milk. This film is about two lifelong friends, a white man from Utah and an African-American man from New Jersey, who recently passed away from complications related to sickle cell disease. Check it out at: www.SpilledMilkMovie.com

Please tell SCDAA what you are planning to do … and show the Association what you actually did to help Shine the Light on Sickle Cell Disease. Send posts, pictures and videos to: www.facebook.com/ShineTheLightOnSickleCell or ShineTheLightonSickleCell@gmail.com

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